May 23rd, 2008
That’s what I’m doing today. It’s 5:00 and I think I’ve missed status migrainous by about 4 hours. Status migrainous is a condition where a migraine has continued for 72 hours without a 4 hour complete break in
pain while awake. It is a serious condition which carries an increased risk of stroke due to long-term dilation of the blood vessels around the brain. I am lying in bed with my fingers crossed because my migraine seems to have finally broken after about 68 hours.
The pain started Tuesday evening and has varied from about a level 2 on a 1 – 10 scale to about a level 8 or 8.5. It has varied from itchy nagging pain all over my head to furious pounding pain in both temples. It has been a particularly sneaky persistent presence, sending me strange nightmares. I have woken up two mornings in a row with the sense of something awful sitting on top of my brain, waiting to pounce. I have used 4 doses of Imitrex on it. Finally today, after all of today in bed, most of yesterday, and half the day before; and after 4 expensive, befuddling and nauseating doses of Imitrex, I think the pain is gone. I’m afraid to move in case it’s just asleep and I wake it up again. For many of you, this will sound quite familiar.
Nearly all of my plans for the last few days have gone out the window. What have I accomplished? I did have an important business conversation with my husband. I did gather up a list of all the homework my son has missed while he’s been out of school with the flu. I did wash a few dishes here and there. I did about 20% of the business work I had on the agenda for the last few days. I helped my daughter find her uniform for work. I’m about to be really ambitious and dig up some pretty pictures to illustrate this post. Other than that, I have been taking care of myself.
What does that look like? Today, and the past few days, it has looked like sleeping late, staying in bed in my pajamas for much of the day. Today it involved not even taking a shower so as to keep my head quiet. Anyone who knows me will tell you how much I hate not taking a shower! It has looked like saying no to even talking to my family when the pain level was high. It has looked like keeping track of how long this migraine has gone on, diarying about it, and calling the doctor for help. I spoke to the nurse this afternoon and now have a plan in place for what to do if the migraine doesn’t break, or recurs, over this holiday weekend. I’m happy to say the Emergency Room is not the first line of defense in the plan!
I went on the My Migraine Connection forum to connect with my buddies over there and gripe about this long migraine. One of my friends told me she was proud of me for taking care of myself. It was a revelation to me, a welcome one, to realize that I have been doing that – taking care of myself!
After 30+ years of migraines, coaching others to accept their disease and build the best life they can around it, I still struggle with acceptance. After basing my self care on meditation and relaxation exercises and building my life around my illnesses, I still fight tooth and nail. I didn’t take an Imitrex Tuesday night because I wasn’t positive it was a migraine. Maybe I could have prevented the following days of pain if I
hadn’t been in denial then. Regret is pointless. Great thanks to Gret for reminding me of what I am accomplishing today. I am taking care of myself. The shower will still be there tomorrow. Chances are, so will the dirty dishes. And the newsletter I owe to you, my subscribers. And the garden beds to weed.
Wherever you are, whatever you’re doing tonight, remember to take care of yourselves. I hope for all of us a pain-free tomorrow.
– Megan
Tags: imitrex, Migraine pain, self care, status migrainous
Posted in Managing | Comments (2)
What's New on Migraine Support Group Coaching |