June 25th, 2008
All my hidden superstition comes out and I hesitate to say this for fear of jinxing myself, but I have only had one very mild Migraine in the past 19 days. It is too soon to tell if this is a trend or a fluke. It’s quite a contrast to the last 6 months though, when I’ve had an average of 5 Migraines per month and my Migraines have generally lasted 36 hours. I promise not to be embarrassed if this trend doesn’t continue. I believe I am doing a lot of right stuff – just sometimes we need even more right stuff to add to our toolkits.
I have yet to try preventive medications; I missed my long-awaited headache specialist appointment when I was sick with bronchitis. But I will give you my current regimen, and list the things that I think are making a difference. Please note that this is my list; the same factors might not work for you.
I have Migraine disease, early stage chronic fatigue syndrome (CFS), low thyroid and, I believe, seasonal affective disorder. I also have allergies, and frequent, sometimes chronic, sinus infections, and am very prone to catching whatever illnesses are around to catch. The factors that I marked with an asterix (*) above are not there to prevent Migraine; they are there to balance my hormones, strengthen my adrenal glands, and manage my CFS. All the research shows that CFS and low thyroid are co-morbid conditions with Migraine – they occur at the same time, without a causal relationship. I can only speak to my own experience, but when I am fatigued, and I push myself beyond my limits, I often get a Migraine. Low thyroid also contributes to my fatigue, which contributes to my Migraine frequency. Unless someone can prove to me otherwise, I will maintain that taking care of my thyroid and CFS also takes care of my Migraines.
I began the Wiley Protocol about a year ago to address menopausal symptoms. The Wiley Protocol replaces a woman’s hormones with the identical hormones her body makes (rather than the synthetic hormones found in traditional HRT), and doses them in the way that mimics her natural cycle when she is young. It is not specifically designed to combat Migraine, but for those of us whose Migraines increased in peri-menopause, it makes sense that returning to a younger hormonal state would help! I found initially that while my Migraine frequency didn’t improve, the severity went way down. My doctor started me on an adjusted dose of the hormones about 3 weeks ago, with estrogen levels raised slightly in the beginning of my cycle and lowered slightly later on. Since that’s the same time period where I’ve been having so few Migraines, I can only guess it’s helping.
I am usually healthier in the warm weather months, and sluggish and illness-prone over the Winter. I feel like I come alive again in the Spring. Short of moving far south, I think I will have to get a light-box for next Winter to address this.
The CFLs are funny for me. They are on a list of things that I “just don’t like” – and haven’t liked most of my life (baking in the hot sun, strong men’s colognes, crowded rooms full of noisy people, fluorescent lights). Lo and behold, these things that I never liked are actually triggers for me. When I began blogging about CFLs a month or two ago it occurred to me to get them out of my own house and see what happened. My husband had started replacing incandescents with CFLs in our overhead lights about six months ago. My Migraine frequency went way up when? About six months ago! Coincidence? We’ve been taking them out again and… fewer Migraines?
A conclusion here? As you all know who deal with this disease, there are many factors involved. If you are one of those people who only has to avoid one trigger, or take one herb, or use one particular drug, to eliminate Migraines, then God bless you! You have my undying jealousy! If you are one of those complicated cases who have to manage multiple triggers and multiple treatments, I know how tired you are of managing it all. I just want to hold out some hope – that the detective work is worth doing, and can make a difference. Keep on trying!
– Megan Oltman
Managing Migraines one day at a time.
Crossed fingers image courtesy of Meisje van de Sliterij.
Tags: chronic fatigue syndrome, magnesium, Migraine treatment, Migraine triggers, the Wiley Protocol, vitamin B2
Posted in Managing, Medicine | Comments (8)
January 8th, 2008
“What if this is as good as it gets?” In the movie of that name, Jack Nicholson plays Melvin, an insulting, anti-social author with obsessive compulsive disorder. Melvin falls for Carol, played by Helen Hunt, the only waitress who will put up with him, at his favorite restaurant. Carol is the struggling single mother of a boy with crippling allergies. Not your typical movie romance, Melvin does grow and change through knowing Carol. But he is far from perfect, even at the end. My favorite line is when Melvin asks Carol “What if this is as good as it gets?”
What if my sinus infections never get any better than this? What if I go on having several migraines a month? What if my house is never any better organized – for the rest of my life?
It’s not a depressing question. Believe it or not. This hit me this morning: For 10 years or more, I have been fighting and struggling, obsessing and agonizing, over getting better. Over things being the way they used to be – when I was 25 and slender, when my sinuses didn’t act up more than once a year and the migraine beast didn’t visit any more often than that, when I had only myself to keep organized rather than a houseful of people and multiple home based businesses. When Danny and I first fell in love. When my in-laws were still alive… need I go on?
What if I don’t have to fight, struggle, obsess or agonize?
What if this is as good as it gets? How bad is this? I’m not saying give up! I’m not saying we can’t improve our conditions, or that we shouldn’t go on learning and growing, seeking better treatment, better options. Of course we must. We grow or stagnate. Our characters are like muscles, they must be built up, or they atrophy. And for most of us, having a chronic illness does not mean we can’t improve.
In the past four years, I have reduced my average migraine duration from 3 days to about 8 hours. I have reduced the frequency from twice a week to 3 times a month. The average severity is down from about a 7 to about a 3 on a 1 to 10 scale. I no longer catch every cold I encounter, and most days I am not so fatigued I need a nap to get through the day. In 2004, I was sick, unable to function, 26% of the time. In 2007, it was 18% of the time. That’s a difference of 30 days. I’ve gained a whole month to live and enjoy my life in, to be with my family, to help my clients, to walk in the woods and fields. I believe this kind of difference is possible for most of us.
How did I do it? Good medical advice, finding what medications are right for me, nutritional supplements, chiropractic, massage, exercise, vitamins, a diet high in fiber and natural foods and low in sugar and refined flour, bio-identical hormone replacement (The Wiley Protocol), getting on a regular rest schedule, learning (slowly, slowly) not to push myself, taking on a daily practice of giving up my perfectionism, meditation, creating a very detailed calendar to track migraines and illnesses, treatments and triggering factors. Being a dedicated manager of my own life. More about all that another time.
This morning I sprayed my achy sinuses with colloidal silver spray (Ag-Cidal), standing before the bathroom mirror, looking at the rings around my eyes, feeling like I would keel over any minute. And it struck me – what if this is as good as it gets?
If it is, my task is clear. I get to live the best life I can possibly live, with these conditions. I know, I said this yesterday. So maybe I’m a slow learner! Or maybe learning isn’t all at once, maybe it spirals around, enabling us to see things in new ways, at deeper levels. Whichever way it is, what I saw today is priceless. If this is as good as it gets, it’s still pretty good. I love the people in my life. I love my house and my little town, the woods and fields around, the big exciting cities nearby. I love my comfy bed where I have been working all day in my pajamas. I love the work I do, and writing for you, and that I can earn a living without going to some job where I’d get fired for being sick so much! Tomorrow, or the next day, or the next, I’m going to get up, clean house, reschedule my canceled appointments, and go out for a walk. Today I’m staying in bed. And it’s pretty good!
– Megan Oltman
The Migraineur-preneur
Tags: acceptance, Helen Hunt, Jack Nicholson, managing life with migraine, the Wiley Protocol
Posted in Film, Managing | Comments (1)
What's New on Migraine Support Group Coaching |