January 31st, 2008
One of the first things you learn when you started dealing with your migraines is to identify and avoid triggers. I learned this shortly after a murderous 5 day migraine I had in Arizona – I was at higher altitudes than I was used to, and there were forest fires all week, exposing me to lots of smoke. I was drinking way more coffee than usual to keep up with a busy vacation schedule with lots of driving. Voila – smoke + altitude + excess caffeine = nasty head-banging five day migraine. For those of you living in Arizona – I don’t hold it against you or your state! It’s a beautiful corner of the world and I wish I had been able to visit with less pain. I saw Sedona in a migraine-fog – I understand it actually looks something like this:
Anyway this experience started me on an important inquiry – what are my triggers, and how can I avoid them?
There are common migraine triggers and then the ones that seem relatively unique to each of us. For one it’s eating dairy, drinking wine, for another flashing lights, particular smells, loud music, smoke, being startled, being in a crowd of loudly talking people, the bright packaging at the supermarket, the tv. It’s important to know what your migraine triggers are. If your brain is a loaded gun, ready to fire off with a migraine, and you know what pulls the trigger, that helps, right? You can avoid the triggering event or substance and reduce the likelihood that you’ll get a migraine.
Some lifestyle changes may be necessary to avoid triggers. Get into a regular sleep routine. Stop eating dairy. Stay away from places with flashing lights. Avoid smokers. (Just for instance. For a complete list of common triggers, visit mymigraineconnection here.) If you live with a smoker, you may need to an agreement that he or she won’t smoke in the house. If you smoke yourself, you may need to make a major change! If your kid’s hard rock music does it, you may need to have some rules around when and how loud it can be on. But some triggers are unavoidable, and we can’t avoid all of them all the time.
So I started asking myself – those may be the triggers, but what loaded the gun in the first place? By the way, it’s most unfair of me to be comparing our unique, sensitive and brilliant brains to guns. I hate guns. But we can’t deny the violence of the migraine. And even if you are a gun owner, I think we’d all agree that you’ve got to keep the thing unloaded around the house to avoid tragic accidents. So what loaded my migraine gun, and how can I keep it unloaded?
Migraine is a response to triggering stimuli. Current thinking is that stress itself is not a trigger but may predispose us to be more vulnerable to our triggers. You can read more about that here. For me, over-stimulation itself is enough of a stress to tip me over into migraine, even if I’m not aware of any other triggers. On some stereo speakers you can turn the volume way up, others you will blow out by turning them up high. Our brains have the blow-out factor set way lower than the other 88 – 90% of the population. So, I say when we are stressed for a long period of time without relief, when we are highly stimulated without relief or let-down, we are loaded for migraine. We may have an ability to go into hyper-drive, to perform effectively, rapidly and intensely. But the more we do that, the more often and the longer duration, the more likely we are to load ourselves for a migraine explosion.
It takes more attention, more thought, more observation and introspection to determine your early warning signs than to determine your triggers. The good news is that if you do get attuned to them, you have a much higher likelihood of avoiding the migraine altogether. When I took on a daily relaxation practice, doing deep breathing and meditation to calm my system down every day, I reduced my migraines. When I got out of practice, the migraines started increasing again.
So what’s your early warning system? For me it’s a tightness in the shoulders and neck that moves up into my head. Also a sense of agitation – moving and thinking really fast. What are the signs for you that come before the triggers, the ones you have the best chance of diffusing? Please leave me a comment to let me know what you think.
(This is supposed to be a picture of your nervous system when it’s all calm and serene, but Thor looks like he’s ready to play. Imagine him curled in a furry purring ball.)
– Megan
Hoping you catch your signals before the guns go off
stereo speakers courtesy of Valerie Everett
Tags: altitude, caffeine, migraine prevention, Migraine triggers, relaxation, smoke
Posted in Managing, Tips & Techniques | Comments (3)
January 26th, 2008
(or – I wish there was another word for sorry!)
I work with people with chronic conditions, and we talk about this – do I have the disease, or does the disease have me? I also work with small business owners and I ask them – “do you have the business, or does the business have you?” Maybe having a business is a form of chronic disease. If so I’ve got another one to add to my list! But I digress…
My buddies on the mymigraineconnection forum were having a discussion today about apologizing for the effects of our migraines. I think we’re in agreement that there are a couple of meanings of the word “sorry.” One is to apologize, but another is to say “I feel for you” or “I am sad that you feel that way.” When someone experiences the death of a loved one we say “I am sorry for your loss,” but we don’t mean that we are feeling personally responsible for the death. I think English needs another word for sorry!
The famous quote from Erich Segal’s Love Story is “Love means never having to say you’re sorry.” I’ve always had a hard time with that line, but I don’t think Segal meant that we can do whatever we like to those we love without acknowledgement. I think he meant that forgiveness is part of loving someone. And even if we can expect forgiveness from those we love, love still needs to be nurtured and watered and fed, like any living thing, or it can wither. I think part of how we nurture and feed those we love is to acknowledge the pain they feel for our pain, the huge help they are for us, the disappointment, inconvenience and extra work our disease causes. So if I say “I’m sorry” when my husband brings me up a meal on a tray, or when I have to ask my son not to play drums right now, or I can’t take my daughter out shopping, what I really mean is “this disease stinks. I wish I didn’t have it and I wish I didn’t have to ask you these things.”
In Emotional Intelligence author Daniel Goleman talks about the ability to stand back from our emotions and observe them. This ability is what gives us some perspective, some emotional intelligence – when we can “count to 10” instead of reacting right away, we have some power over what we feel. So to tie this in with feeling sorry, maybe when we say “I’m sorry,” when someone brings us a glass of water, we’re separating ourselves from the migraine disease – we’re saying “I am not my disease. I have migraines but they don’t have me. I wish I didn’t have them – but there is a me here, completely separate from the disease, who regrets the trouble and sorrow the disease brings.”
My heart goes out to those in constant pain, in part because of this – the more pain, the more constant, the harder it is to keep that healthy perspective. When I can remember that I am not the migraine, the migraine doesn’t have me, that’s when I can take back my life.
– Megan Oltman
With enormous love and gratitude for Danny, Rachel, Adam, Mom & Dad, my siblings and in-laws and the many other family members and friends who bring me glasses of water, literal and figurative.
Lunch tray courtesy of Wordridden/Jessica
Glass of water courtesy of Venkane/Nevena
Tags: acknowledgement, apology, appreciation, Communicating
Posted in Communicating, Managing, Tips & Techniques | Comments (3)
January 22nd, 2008
Here’s the view down the lane from me this morning – I took a chilly walk with Kimi. Snow is coming in a little while. I did all the things I should this morning, stretched, meditated, ate a light healthy breakfast, took my supplements and meds, stayed calm. Planned my day, did some work, took a walk. A morning of living healthy. (Go ahead, give me a gold star!) I’ll do that a few times and then I’ll think I don’t have to any more. Anyone else out there like me?
I’ve been thinking about what it takes to live healthy. Like everyone, I’ve been secretly hoping for the magic pill. Where do we get that fantasy from? Is it from fairy tales, a constant wish for the magic wand that banishes all ills, or the knight on the white horse to take us away, or is it pharmaceutical commercials (potential side-effects include loss of common sense, temporary irresponsibility…)?
But wouldn’t it be nice? Just give me the magic pill (once, mind you, I’m not interested in something I have to do every day, or refill prescriptions for, or pay co-pays ad nauseum…) and then I can live like everybody else.
Oh, like everybody else, huh? What does my fantasy mean by that? Hmm well I imagine everybody else can stay up as late as they want, as often as they want. They can eat sugar without getting hooked on it. They can drink coffee without revving their systems up so much they get migraines. They can live without exercise. They can drink alcohol. They can be around cigarette smoke. They stay calm cool and collected. They certainly never ever have to meditate, or breathe deep, or stretch. They don’t have to go to the chiropractor every two weeks, they never need a nap, they have abundant energy all day, their houses are tidy and clean… How much of the human race have I eliminated by now? I guess there may be one or two paragons like this somewhere, but I know I haven’t met many! Funny thing is, to live healthy with my conditions, mostly I have to do what common wisdom and the medical profession tells us we all need to be doing. The main difference seems to be: for those of us with chronic illness, the breakdown comes faster. We don’t have to wait 30 years for the heart attack – we get the migraine attack right now!
Living healthy with migraine disease, and chronic fatigue, and a chronic sinus condition, seasonal allergies, allergies to pain meds, and irritable bowel syndrome, hypothyroidism, periodic anxiety and depression, looks like this for me:
1) regular and sufficient sleep
2) a diet high in fiber, organic foods, fruits and vegetables, and low in dairy, refined sugar and flour and food additives
3) vitamins, minerals and nutritional supplements
4) thyroid supplements
5) natural, bio-identical hormone replacement therapy
6) antihistamines
7) a humidified house
8) flushing my sinuses with a neti pot a couple of times a week
9) triptans for migraine attacks
10) daily stretching
11) daily meditation and relaxation practice
12) journaling
13) keeping a detailed wellness diary
14) regular exercise – at least 5 times a week
15) chiropractic visits every other week
16) a life coach to help me stay on track
17) keeping in touch with my medical team about what’s working, what’s changing, what’s next
18) keeping a regular work schedule and managing my time and projects to keep my anxiety level low
19) other stuff I can’t think of at the moment…
If I do all this, I am less likely to get a migraine. I am less likely to catch every cold that comes down the pike and turn it into a sinus infection. I am unlikely to have an ibs flare-up and I don’t fatigue easily and I feel serene… and then I think I’m cured. I think somewhere in all that was a magic pill and I can have a great big cup of coffee with a cheese danish and stay up half the night and work without breaks… until the migraine slams me down again.
Or even worse, I get sick anyway, even though I did everything right, or nearly everything right, and then I think, what’s the use of working so hard to stay healthy?
So, here’s my commitment: One day at a time, I will live healthy. I will do it for the rest of today. Tomorrow all bets are off… (just kidding!)
Oh, it just started snowing!
– Megan Oltman
Live well and prosper!
pill image courtesy of [O*] ‘BharaT
checklist courtesy of Jon-Eric Melsaeter
snowflakes courtesy of Lin Pernille
Tags: managing life with migraine, one day at a time, relaxation practice, self care, vitamins
Posted in Managing, Tips & Techniques | Comments (2)
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