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Archive for the ‘Musings’ Category

Move a Muscle, Change a Thought

June 12th, 2009

Move a Muscle, Change a Thought. I first heard that in a self-help program many years ago. It’s easy to stay stuck in a certain way of thinking, to stay down and confused and immobilized when we stay in the same place, looking at the same things. Get up, move, do something different, move a muscle, change a thought. There is now all kinds of scientific evidence to back up this idea, of the benefits of physical activity and exercise. I’m not just talking about working out or even taking a walk, though. Just do something to shift, move, change your perspective, take some action, get something moving.

This is as true for those of us with Migraine disease and chronic illness as it is for anyone else. Maybe more so. When we are in chronic or frequent pain it’s hard to act on this. I don’t deny it. But as hard as it is, it’s very important. It may be that walking to the mailbox is as far as you can go. It may be that sitting up for an hour instead of lying down is a major challenge. Do it, if you possibly can. We need accomplishment in our lives to make our lives feel worthwhile to us. We need goals, even tiny ones. We need to feel we are contributing, even if the extent of the contribution is to wash 3 of the dirty dishes. There will be those times when we cannot do anything but endure our pain, or when attending to our healing is all we should do, but when it is not one of those times, it is time to be doing something.

We also need the shift in perspective. When you stay in one place for a long time, your world can close in. You can’t see your way out of problems. Moving your body changes what your eyes see, it helps your blood flow, it helps you breathe more fully, and it opens up your thinking.

I just completed the set of BREESE relaxation recordings which are available on the products page here on Free my Brain. The final BREESE Breathing recording teaches a breathing and movement technique I use to help get the breath and blood moving and the whole body relaxed. You can use this when you have mild head pain, or in the post-drome phase after a Migraine to start moving again and aiding your recovery.

Another technique taught me long ago is to take a green break. Plants produce the oxygen we need to survive, they also produce negative ions which soothe us. Get outdoors and be with a green growing thing. If you can’t get out, spend a few minutes with a house plant. When all else fails, look out a window at something green, or even look at a picture of trees, fields, the natural world. Get up, leave the house, cross the room, or even roll over and contemplate something green. Let your worries flow out of you into the green growing world. Just as plants use our carbon dioxide, the waste from our breath, to produce oxygen, let the waste of our minds, our worry and anxiety, flow out into the natural world and be transformed.

Life rewards action. There’s another great saying, and I don’t know where I first heard it, but I have found it to be true, for me and for the people I work with. Here in New Jersey we have had several weeks of almost non-stop rain. It is gray, damp and chilly, except when it’s gray, damp and muggy. Although I don’t trigger at every barometric pressure change like some Migraineurs, I did eventually get a Migraine over the past few days. It was very hard to get up and move. But once the active pain phase had passed, and during a break in the clouds, when it was just drizzling instead of down-pouring, I went out for a walk. I walked gently, doing my relaxation breathing in rhythm with my steps. I came back more optimistic, with the fog of post-drome beginning to lift. I played a game with my kids; I began writing this piece.

Do what you can to get in action. Little actions can make a big difference. Roll over, shift your perspective. Move a muscle, change a thought. Let me know how I can help!

– Megan

Walk in the light image courtesy of H. Koppdelaney; Rain shower image courtesy of AlmazUK.

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Juggling Work & Illness

June 10th, 2009

Some of you may know that for the past few months I have been writing articles on Health Central’s My Migraine Connection on legal issues that relate to Migraine and chronic illness – doctor/patient confidentiality, protection of your Medical Records under HIPAA, Accommodations under the Americans with Disabilities Act, and look soon (in the next day or two) for an article on taking intermittent leave under the Family Medical Leave Act. You may know that in addition to coaching Migraineurs and others with chronic illness in how to manage life, get better, and live well with chronic illness, I am also a business coach, an attorney and a mediator, and I’m helping my husband develop several other web-based businesses for our family.

I try not to make too many recommendations that I haven’t tried myself, and so if I am going to coach and advise people in how to perform the extreme juggling act that is life with chronic illness, I guess I’d better be quite the juggler myself. I didn’t necessarily set out to do it on purpose – it worked out that way. When full time lawyering didn’t fit with chronic fatigue and triggered too many Migraines, when business coaching dropped way off in the current economy, when Migraine management coaching was a great idea but needed some time to develop, I have tried to keep nimble and keep using all my skills, trying new things and renewing old ones, all while getting sufficient rest, managing my triggers, and practicing my intentional relaxation.

I really started out this post to point you to the writing I’ve done on legal topics lately, because I think as you are managing your life with Migraine, these are useful pieces of information for you to have. But I do think a lot about all the many pieces that make up my life, the balls I have up in the air, as I work to manage it all, and to help those of you who work with me to manage what you juggle as well. It’s great to have something to work on. You don’t need to have as many things to manage as I do – I’m probably an extreme case. But it is important for us to have a sense of purpose and to be making a contribution in life – even when we are ill. It may not be work for pay – but if that’s possible, it’s a good thing! I recently added a little part-time job to my mix that keeps me on my feet for several hours, several days a week. Despite some initial exhaustion, over all my stamina seems to be building.

I hope for you that you have something that can get you out of bed and give you a sense of purpose – at least some of the time. Let me know how your juggling act is going!

– Megan

Street juggler image courtesy of Amit Bansal.

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Counting Down to Thunder

May 25th, 2009

In this season of thunderstorms, I am finding my head more and more like a barometer, predicting the electric activity in the atmosphere.  I hope you are enjoying your Memorial Day weekend – mine has had its ups and downs with the weather! I did want to share a poem of mine with you – it won an honorable mention in the Putting our Heads Together Migraine and Headache Poetry Contest this year.

Counting Down to Thunder

Counting down to thunder,
how many miles the storm lurks in the night?
Lightning pierces slumber,
grasp the shattered shards of sleep.

Where the welcome rain?
Where the soothing break in summer’s pain?

Storms without at last pile high upon the storms within –
thunder’s crash inside my skull tore life from many days.
Come tempest wash it clean again.

– Megan

Lightning image courtesy of Ian Boggs.

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Creating a Migraine-Friendly Home Environment

March 6th, 2009

When I was a kid one of the games my brother and sister and I used to love to play on a Saturday was the Farm Game. It involved the Encyclopedia, and a pad and pen. We designed an imaginary farm for the three of us to live on and run, and we would draw it and plan it, and use the Encyclopedia to select our location and all our animals and plants.  I’m sure the farms we created would have been impossible to run, with animals that wouldn’t get along, and plant species that wouldn’t grow wherever it was that we were going to be. But it kept us busy for hours, and we loved it.

Creating the Migraine-friendly home enviroment is a little like that. I could spend hours, and use home design and architecture magazines, catalogs, the web, and a lot of imagination. I could spend bottomless amounts of money I don’t have, to create this environment, have a great time doing it, and I don’t know how practical it would be at the end. But what I’ll try to do here, instead, is mix fantasy and reality, pie in the sky with down to earth, and see if we can come up with some things you can actually use.

Starting outside, the Migraine-friendly home should be well-shaded, with deep covered porches and pollen-free trees.  Migraineurs need fresh air and good circulation, but have trouble with extreme heat and bright sun, and often get triggered in high-pollen season.  So let’s make it possible to get outside even with a Migraine, and to open the windows and enjoy the fresh air.

Inside, lighting is very important.  If you can choose lighting fixtures, great. I discovered the hard way that “high-hat” spot-lights are terrible for me, bright lighting coming down into the top of my eyes is about the worst from a triggering standpoint.  Torchiere type lights, which point the light upwards and spread it gently on the ceiling, illuminate the room more indirectly and can give plenty of light without glare.  Many Migraineurs find that fluorescents, even compact fluorescents, trigger them. Good old-fashioned shaded incandescent lamps can be good. We just recently got some of the brand new soft-white LED lights, which we have put in the “high-hat” sockets, and they are terrific.  Non-flickering, soft illumination, but plenty of it. For the first time, I can have light coming down from above that doesn’t trigger me! They are very good for the environment, too.

Having a quiet place to escape to is key. Lots of my Migraineur friends spend time on the couch, for me it’s my bed. I have 2 kids and a husband who like lots of music and tvs on and I need a place where I can control the light, sound and stimulation level. If you could really set it all up beforehand like the Farm Game you would choose yourself a quiet partner and quiet kids, but I wouldn’t trade the ones I have. I just have to buffer them at times.

Ideally, the Migraine-Friendly home environment would be tidy enough that the Migraineur was not tripping over stuff all the time, without the Migraineur having to be the one to tidy it up all the time. This also falls into the realm of the Farm Game – the ideal Migraine-friendly home environment comes with enough money to hire someone to do the house-keeping. Either that or choose your spouse based on their neatness and housekeeping abilities, though that may not be the best reason to choose your life companion.

Don’t forget to keep what you need for comfort on hand, whether it’s pillows, blankets, eye-shades, ice-packs, comedy DVDs, kitties, doggies, books on tape, spouses, children, best friends, rocking chairs, ginger Altoids, Ben & Jerry’s Heath Bar Crunch, you name it.  What else would you add to the design for the Migraine-friendly home?

– Megan

P.S. No, that is not a picture of my house. I wish!

Wisconsin Farm image courtesy of Randen Pederson; craftsman house image courtesy of David Sawyer.

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Being Chronically Ill, and Feeling Well

March 5th, 2009

I woke up feeling well, and well rested, before my alarm went off this morning. That may not sound like a big deal, but it is very unusual for me, and worth commenting on. I went to bed last night with a Migraine that hadn’t fully resolved, and with a queasy stomach, which I thought was nausea from the Migraine. The head pain was completely gone this morning but now in early afternoon my stomach has gone back to feeling a bit queasy, so I am wondering in retrospect whether the stomach gripe yesterday was Migraine nausea or IBS or whatever else this may be that I am feeling today. Having multiple chronic illnesses is like that. Most of the time I’m grateful if nothing really major is going on. It’s rare that some degree of minor ick isn’t happening, and it’s also rare that I can sort it all out and say definitively what is bothering me on a given day.

I felt so well that I set my Facebook status this morning to say “Megan Oltman is feeling really well for the first time in weeks.” Within a few hours I found myself musing on what exactly “feeling really well” is, whether it’s a moving target, and whether it’s a claim I can make. I’m not feeling as well as I was when I got up this morning. On the other hand, I don’t have a Migraine, my stomach is only a little queasy with no major pain or cramping, I don’t feel fatigued, I am mentally clear, I am not congested, I am fairly energetic – this is a good day! I might even color it pink!

I have a Wellness calendar which I color code to indicate how well I am on a given day. This allows me to keep statistics and track trends. I calculate how many Migraines per month I have, how severe, how long they last, what triggers them and what I do to treat them. I calculate how many days I am sick but functioning, how many days semi-functioning, and how many completely out of action.  Each type of day has a color. Days I feel great I am “in the pink.”  Then I calculate percentages of wellness and illness for a given month, for two and four months trends, for a year.  Yesterday I caught my statistics up and discovered that 2008 was my worst year for wellness since I started tracking.  Not that I couldn’t have told you that by gut feel, too, but it’s a rude awakening to see it in black and white and pink and orange and brown… I really think I deserved a pink day after that.

A dear friend, who lives far away, and who I don’t talk to nearly often enough, read some of my writing recently and told me she was surprised to hear me describe myself as having been chronically ill for the past 14 years. She thought I must be uncomfortable talking about it, or why had I never told her? Laura’s a perceptive one, and of course it has been uncomfortable to talk about, especially in the first 8 or so of those years where I was trying to figure out what was wrong with me, blaming myself, thinking I was a hypochondriac, all the things that so many of us do. Now I think it’s not so much discomfort as just a long story to catch people up on. That’s part of what I try to do here. I am chronically ill. I have chronic Migraine disease, chronice fatigue syndrome, irritable bowel syndrome, multiple allergies, and chronic, or at least frequently recurrent, sinus infections. The good news is that I am actually up and functioning about 75% of the time!

February was a bad month. I was sick 14 out of 28 days, and that doesn’t even count days I was okay all day but was knocked out with a Migraine in the evening. Today I got out for a walk. I am clawing my way back to the top of the mess in the house and on my desk, and feeling caught up with my work again. The sun is shining, the snow is melting, and I feel well. Pink? At least pinkish!

– Megan

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Coping with Fatigue

March 1st, 2009

It’s my second day in a row where I feel achy and tired all over and just can’t get going.  I’ve had my 8 1/2 to 9 hours of sleep; I have been taking it slow and easy.  This kind of fatigue is a common reaction for me when I have travelled or otherwise exerted myself over several days.  I guess a 3 1/2 hour drive to Washington, an evening of training, a late night, a day of lobbying with a Migraine at the end of it, a morning meeting then another 3 1/2 hour drive, then 2 busy working days, count as exerting myself.  It feels as if the tiredness stores itself up in my muscles and doesn’t drain out for days on end.

It used to be that I felt like this every day, five or six years ago.  That was before I began taking thyroid supplements and bio-identical hormone replacement therapy.  It was also before I began practicing good sleep hygeine to manage my Migraines – getting enough sleep and the same amount, at approximately the same time, every night.

I have learned not to push myself when I feel this way.  I will recover faster if I rest and take it slow than if I try to power through and get a lot done.  It’s hard, though, to cope with the mess around me and not be able to do much about it.  It’s hard to cope with the reality that I have a lot of days like this, and I can’t get done what I once could.

My primary doctor diagnosed me with chronic fatigue syndrome about six years ago; his treatment approach to it is mainly to seek to balance my hormones and that has helped a lot.  Coach Debra Russell of Artist’s Edge helped me too; she and I traded coaching and it was Debra that taught me that when I am fatigued, I need to rest. Period.

Now I find myself wondering what else is available.  As I work with migraine sufferers and other chronically ill folks, I have read some more of the chronic fatigue and fibromyalgia literature.  I have to admit to a certain level of denial rearing its ugly head for me once again – I don’t want to face the possibility that I might have fibromyalgia as well.  Of course we all know how silly this is (and denial always is silly, powerful and destructive though it may be) – because if I have it, I have it, whether I know it or not, and it’s knowledge that is power, not ignorance.

Well, friends, I make my promise to you – I will go read up on cfs and fibromyalgia and find out what else I should be doing to take care of myself.  Today it looks like I’ll be getting the taxes ready from my semi-recumbent position. Nice and restful, eh?

– Megan

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Avoiding the ER

February 16th, 2009

I narrowly averted an Emergency Room visit yesterday. I’m not really sure if I should be saying that proudly or with embarrassment.  The fact is that I have never yet been to the Emergency Room for a Migraine.  It had never occurred to me until I began studying up on Migraine a few years ago that it was even an option. I don’t know why – I just figured, it was pain, you just put up with it.  Since then I’m happy to say that although my Migraines are frequent, they have not often been severe and they don’t often last more than 24 hours.  I have had half a dozen Migraines where I was within an hour or so of deciding to go for emergency care, but the pain abated, the Migraine resolved, and I averted it.

When should you go for emergency care? If you have a Migraine that continues for 72 hours without a 4 hour break in pain while awake, you are in status migrainous, a dangerous condition which carries an increased risk of stroke. Before you hit that 72 hour mark, seek emergency care to break the Migraine.  However, my headache specialist has told me that if my usual abortives are not effective on a Migraine, if my pain levels are unusually high, or if the pattern is out of the ordinary for me, I should not hesitate to seek emergency care.  What you want in the emergency room is probably not narcotics, which are generally not very effective for treating Migraines anyway, what you want is one of several intravenous treatments which will actually break the Migraine cycle. Here is a list of recommended IV treatments at My Migraine Connection.

I woke Friday morning with a severe Migraine. After 2 doses of Imitrex it subsided somewhat, the pain went from about a level 7 to a level 4 and I thought it was resolving.  I still had pain when I went to bed but thought it would fully resolve while I slept.  I woke Saturday morning with pain at about a level 2.  This could still be a Migraine in the process of resolving.  It grew a little worse throughout the day and I gave myself another Imitrex injection in the afternoon. Again, this knocked the pain level back enough that I thought it was probably resolving. Yesterday when I awoke the pain was severe, around a level 8, and pounding.  I took another Imitrex injection, and a reglan, an anti-nausea medication.  Around 10 I took an oxycodone – a narcotic I have as a rescue medication.  A few hours later I took the last Imitrex injection I am allowed for the week.  At this point, the Migraine was almost 60 hours old.  If it did not respond to that last Imitrex, I was bound for the ER.  The combination of the oxycodone and the Imitrex put me to sleep, and when I woke up a few hours later the pain was down to about a 2, the pounding had stopped, and it felt like I was on the mend.  So I did not go.  Today my head feels a little sore, as if it was bruised, but I am not sensitive to light or sound and I believe I have moved on to the post-drome phase.

Did I make the right choice? I don’t know. I’d be more confident talking about this if I didn’t feel deeply reluctant, even fearful, about going to the Emergency Room.  I’m not sure why.  Yes, I’ve heard horror stories about Migraineurs being turned away and mistreated as drug seekers. I’m prepared to go in with my list of IV meds and my assertive husband and tell them I don’t want narcotics, I want something that will break the Migraine. I will also go to the ER at the hospital where my headache specialist practices, where they will call the neurologist on call who will have access to specific instructions about what to give me. I have been treated in several Emergency Rooms for several things and yes, had my life saved there. I do have some life-threatening medication allergies – maybe that’s what makes me nervous. Maybe it’s the old perfectionist’s reluctance to let anyone else be in charge – especially when my life is on the line!

I feel like I was saved by the bell, yet again. I hope that if I had felt no relief from those two meds in the early afternoon yesterday I would have gone off the ER. I believe I would have – Danny was prepared to take me, and I don’t think he would have let me off the hook at that point.  One of these days I’m going to have to get it over with and do it.  Please tell me about your ER experiences!

– Megan

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Telling the Truth about Your Disease

January 15th, 2009

Here’s a New Year’s Resolution for you: Tell the truth about your disease this year! How many of us are walking around in a state of denial, not having told the truth to ourselves about our disease, or about what we need to do to manage it? How many of us are in a state of conflict, hurt feelings, or even losing relationships with the people in our lives who don’t know the truth about our disease either?

What do I mean by telling the truth? It may be that many of us would be better off if we didn’t have to work, or care of our families, if someone else would care for us, or pay the bills, but we just don’t live in that reality. Telling the truth doesn’t mean you have to deny your reality, or not deal with it. Quite the contrary, your reality may be that you have to work, and care for your family, but you can’t care for your home to the standards you have always had, or you can’t work the kind of hours you once expected of yourself, or you can’t micro-manage your family members but have to allow them to make mistakes and muddle through. There may be many things that you have to let slide, and telling the truth may involve reminding yourself that if you exacerbate your disease through overwork, lack of rest, not caring for yourself, then none of the other things you value will be possible. For many of us, the truth is we must put ourselves first, and that isn’t some kind of nasty self-indulgence, it’s not “No I can’t take care of my child I have to watch tv and eat these bon-bons,” it’s “I must care for my well-being or there will be none left of me to care for others.” It means put on your oxygen mask first on the air-plane or you will both be dead!

Denial is what has us clean one more thing instead of resting, or ignore the migraine twinges instead of taking the medication to treat early. Denial is what has us try to be super-women and men, has us go on hosting huge parties in order to not disappoint the family, or do whatever we believe is expected of us, at the expense of our well-being.  Denial is lying to ourselves about our own disease.

This may sound harsh, and believe me if you find yourself in a state of denial you have all my sympathy. I find myself there from time to time as well. It is human, and it will happen. The key is to practice telling the truth, to have it become a habit. You may not want to answer “How are you?” with complete truth in every situation – there may be reasons not to do that at work or in some social situations. But practice telling the truth about who you are to yourself, and to someone! Come here and tell it to me, in a comment. Sign up for the e-course The Six Keys to Manage Your Life With Migraine (in the upper right corner of the page) and tell it to me there. Register for a relaxation or support teleclass and talk about it there. Go to a Migraine Forum and talk about it. Find a friend or two you can tell. Write it in a journal, or in your own blog. But practice telling the truth.

And remember that there are people in your life who need to know the truth about your disease as well. You may want to practice telling that truth to yourself first, but your spouse or significant other, your parents or children or siblings or best friends, need to know some basics.

Here’s a link to a great letter Teri Robert wrote to share with the people in your life to help them understand Migraine disease. I can’t promise you that every person in your life will understand and support you. If you can keep the conversation about your disease and asking for their help and understanding, and keep any hurt or accusations about past actions out of it, most people are more receptive. I can promise you, though, that it is important to take this step. More hurt feelings and lost relationships come about from not trying, from failing to communicate, from wishing, hoping and expecting the other person to understand. There’s no way around communicating, scary though that may be.  If I can support you, please let me know.

– Megan

Heads together image courtesy of Vera & Jean-Christophe; conversation image courtesy of John Wigham.

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Happy Birthday Free My Brain

January 14th, 2009

Guess What, Free my Brain from Migraine Pain is one year and one week old today! Time flies when you’re running around like a chicken without a head, as my mother would say… So I forgot my own blog-birthday last week. It has been a privilege to share with you over the past year and a bit. Please enjoy some virtual, calorie-free, serotonin-rich cake with me. I baked it in your favorite flavor!

– Megan

Many thanks to Elaine Ashton for the Giant 1st Birthday Cupcake Image!

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Hello there Migraineurs – I’m Still Here!

December 30th, 2008

Hello dear readers – I think this may be my the longest break between posts since I started blogging last January. I apologize for leaving you alone so long! I’m happy to report that the reason for my silence is not that I’ve been off having Migraine attacks – well, not many. I’ve had two since I last spoke to you on December 11th – that’s a great 3 weeks for me! Actually I have felt well, and I have had the opportunity to do quite a bit more paid work, which made me quite busy, and which makes our family budget very happy! And then, of course, it has been the holiday season, and even with a toned-down, taking-it-easy and not-over-doing-it kind of holiday season, I’ve been busy with that!

It’s appropriate that my last post was about balance. Remember that see-saw. Balance is always about adjusting – it shifts, and shifts again. I’m in the middle of a big shift right now. I’m finding that I have more energy to work during the day, and more energy to be with my family and friends, and care for my home, than I have had for a long time. Where’s the energy coming from? I think the Topamax is working well for me. I think the relaxation practice is working well for me, and leading some of you in relaxation sessions has reinforced my own relaxation. I also think that adding CoEnzyme Q-10 to my supplement list has helped a lot. Just having fewer Migraines makes a world of difference. I didn’t even know how much constant low level head pain I was living with – until most of it went away over the past few months.

The other side of the see-saw is that I need to still find the time for this blog, for the writing and creating that is important to me, for staying connected with the Migraine community that sustains me. I need the reminder that I am not, will never be, and don’t need to be, Superwoman, and that I still need plenty of rest and down time.

I love this week between Christmas and New Year’s when things are quiet and slow. Yes, there are celebrations and parties, and yes we’ve been to some of them. Some people go away on vacation, and though we went visiting over the weekend, for the most part we are staying put. I catch up on all sorts of paperwork, get my files in order, straighten up. For some reason the tasks I put off and hate the thought of all year become very satisfying to get finished. It’s interesting to me that this year I really get a chance for a kind of a fresh start, with a new level of control over my Migraines, with new work to do, with my desk clear and files in order to make room for new things. Then whatever those new things turn out to be, they will have to be worked into the balance. The balance will shift.

Thanks to all of you for being on this journey with me this year – it has been one of great learning and growth for me, I hope it has for you too. If I don’t talk to you again in 2008 (25 hours of it to go!) I wish you a happy and healthy new year!

– Megan

Christmas see-saw image courtesy of Tomeppy.

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